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Fundraising Tracker
Our Goal: $60,000
2008 to Present: $53,054
Thank you for donating to help Leaf recieve the medical treatment he needs to live his best possible life!
If you prefer to mail a check rather than an online donation, please use the following address.
1099 Main Ave., Suite 500, Durango, Colorado 81301 USA
Please make checks payable to: Sight for Leaf
2008 to Present: $53,054
Thank you for donating to help Leaf recieve the medical treatment he needs to live his best possible life!
If you prefer to mail a check rather than an online donation, please use the following address.
1099 Main Ave., Suite 500, Durango, Colorado 81301 USA
Please make checks payable to: Sight for Leaf
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At-A-Glance
Optic nerve hypoplasia is a visual disorder that affects the optic nerve, the bundle of fibers that transmits signals from the retina to the brain. In optic nerve hypoplasia, the nerve has not developed. This may mean that the child may have some vision or may be blind, depending on how much of the optic nerve is intact.
Hypopituitarism is the underactivity of the pituitary gland, resulting in inadequate hormone production.
Most health providers in the medical profession believe there is no cure for ONH. They simply suggest parents do the best they can.
Hypopituitarism is the underactivity of the pituitary gland, resulting in inadequate hormone production.
Most health providers in the medical profession believe there is no cure for ONH. They simply suggest parents do the best they can.
Click on the links below to learn more about the doctors and researches who are working to help children like Leaf. Blindness from ONH is only one of many diseases Beike is working to cure.
Beike Biotech, a world leader in stem cell research.
Beike in the news.
Followers
A growing list of donors who have contributed their time, talents and money toward Leaf's procedure
- Aaron Seekford
- Adina Miano
- Agnes Murman
- Akop "Jack" Karapetyan
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- Alfred Couchon
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2 comments:
Hi Kate -
I met you tonight at the PVI basketball jamboree - glad you and Leaf's grandmother were there. I donated some cash, hopefully it adds up. The little guy could use some help it seems. The neuro-opthamologist that I was thinking of is Dr. Preston Calvert, at (703) 461-1908, and his address is 5249 Duke Street in Alexandria, VA. His email is pec@neurophth.com. Dr. Calvert has an amazing attention to detail, and beyond that he is an incredibly fair and wonderful man. If you get in touch with him, please let him know that I said hello. All the best to the little guy.
Thanks for the contribution and contact info David.
We'll keep Dr. Calvert's number on hand - maybe we can see him next time we visit Katie and family. We are very excited for Leaf to have the stem cell treatment. There is a wonderful little boy in there behind those restless eyes - who is working hard to make sense of the world. With bolstered vision, I think it will be hard to keep up with his curiosity. Thank you, thank you - it means so much.
Stephanie and Johnny
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