Hi Stephie! You and Leaf are my earth angels. I don't know what I would do without you or him! I will share this with as many people that will listen to me and even to those who wont! Love you and miss you so much! Chantilly
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At-A-Glance
Optic nerve hypoplasia is a visual disorder that affects the optic nerve, the bundle of fibers that transmits signals from the retina to the brain. In optic nerve hypoplasia, the nerve has not developed. This may mean that the child may have some vision or may be blind, depending on how much of the optic nerve is intact.
Hypopituitarismis the underactivity of the pituitary gland, resulting in inadequate hormone production.
Most health providers in the medical profession believe there is no cure for ONH. They simply suggest parents do the best they can.
Click on the links below to learn more about the doctors and researches who are working to help children like Leaf. Blindness from ONH is only one of many diseases Beike is working to cure.
Beike Biotech, a world leader in stem cell research.
7 comments:
Hi!
We're family! I will put Leaf's info on Lily's blog! Leaf's grandfather Ray is a cousin to my husband. I think ;-)
Will you send a picture of Leaf so I can put it on her blog, mom24-7@comcast.net
Great news!!
Hi Stephie! You and Leaf are my earth angels. I don't know what I would do without you or him! I will share this with as many people that will listen to me and even to those who wont! Love you and miss you so much! Chantilly
Wow! I am so amazed at how this has grown. I knew it would happen, but its still to amazing to see. Great idea putting the names out there:)
I love seeing the fundraising tracker go up and up every day! How exciting! Love you all! Chantilly
Hi!
Have a safe trip, our prayers are with you.
Love,
Mary Catherine Martin
Concord, NC
(one of your cousins from the Farris side)
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