Leaf is having a fantastic day today. Yesterday was his second stem cell procedure. He was happily playing all night afterward. The procedure itself was a bit rough on him - he's difficult to get to sleep, with medications or otherwise. I do think that the stem cells are already helping his vision. There have been little signs of improvement the last few days. When he is nice and rested, his visual reaction time is very quick and he is noticing things that have more subtle color. I've caught him trying to look at his dad's face out of the corner of his eyes several times too. We are still in the very beginning stages of the treatment, so these new steps hold substantial encouragement for us.
The doctors here believe that the stem cells will also improve Leaf's endocrine situation. Some of the other children who have received this treatment have been able to reduce their medicines after time.
So today, we are extraordinarily thankful for every single person who has helped Leaf to this stage in his unique journey. We are thinking of you all - For those of you in the US, I am imagining your beautiful tables with autumn colors, candles and lovely food, your voices and laughter too.
Wishing we could be with you.
All our love, Stephanie and Johnny
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2 comments:
Steph,
I copied this from the comments section to a post. Such great news, I wanted to make sure everyone could see it. Last night the fund raiser at the Hackensaw boys went really well! Happy Thanksgiving:)
Deidre
We are so thankful for the generous contributions of friends, family and strangers. I truly feel so grateful every day, but especially today, on Thanksgiving, for the compassion I have seen on the faces of so many who really want the best for Leaf. I hope that their kindness and support sustains you through any rough times. Please know that thoughts, prayers, love and good karma are with you all so far away from the hugs and words we wish we could be sharing in person. We love and miss you!
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